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HYPERMOBILE YES! These are exact postures chosen by hypermobile patients with unilateral sacroiliac joint disorder & low back pain on that side. One leg bolsters the other so as to hold up the hemi-pelvis on side the SIJ is subluxing; because it hurts to sit on that buttock.


Another posture that attends unilateral sacroiliac joint disorder in hypermobile people is the Trendelenberg posture. This is to sit flexed forward with elbows on both knees. When brought to their attention, many are apologetic, “I know I shouldn’t slouch”.

The Trendelenberg posture is in fact the wisdom of the body finding the most comfortable position; in this seated bent over position the femurs leverage each sacroiliac joint into an anatomical neutral station; so joint ligaments are not stretched.

Standing posture liked in low back pain due to unilateral sacroiliac joint (SIJ) disorder: keep same-side leg straight & slightly flex knee on stable SIJ side; posture that lowers normal hemi-pelvis down & horizontal with loose sagging side. Body likes horizontal pelvis platform

People with sacroiliac joint (SIJ) disorder sleep restlessly like “rotisserie chicken”, but favored sleeping posture is on the non-subluxing-SIJ side; whereby injured loose SIJ floats upward; better if subluxing-SIJ-side leg is thrown up & over husband, dog, or large body pillow.
I don’t know how to make the world understand what it’s like to live with longterm illness. To wake up each day never knowing if you’ll be ok, to have your dreams and plans constantly disrupted. What it’s like to never feel rested and to always be in pain


I have EDS. 79.5% of people with Ehlers-Danlos have significant fatigue (Anne Krahe, 2017, Systemic Manifestations and Health- Related Quality of Life in Joint Hypermobility Syndrome/Ehlers- Danlos Syndrome-Hypermobility Type)

“Chronic pain has been documented to affect up to 100% of individuals with a diagnosis of JHS/EDS-HT, while 85.7% report experiencing progressively worsening pain.” (Ibid.)

I am just...so sorry for all the people who survive COVID-19 trying to find condition management that doesn’t exist or is unaffordable. I’m so angry at all the hooks and lures set out by shills and charlatans that’ll cause so much iatrogenic harm

I want you to know that you won’t be the same person after you become chronically ill. It changes you and forces you to find new ways to live. Embrace that transition but know it’s ok to grieve for what you’ve lost
One thing I really notice in friends who haven't done any therapy is a lack of conflict resolution skills. So I figure hey, let's do a mini lesson on conflict resolution right here in this thread.

One philosophy for conflict resolution within psychology is that there are three main priorities you can have in a conflict: respecting yourself, maintaining a good relationship with the other person, or getting a task done. (Reference: these DBT skills
https://t.co/C7CAlDaE5A )

Most people want to do all three, and you can, but the idea is it can be unrealistic to get all three goals accomplished perfectly-- maybe it's worth thinking about which goals matter most to you right now, in this scenario and relationship, and which you're willing to sacrifice.

To respect yourself, these are good guidelines to prioritize:
1 Keep fairness strongly in mind.
2 Be wary of apologizing. Think hard before offering any apology-- do you really need to say sorry here?
3 Keep in mind what you value.
4 Stick to being truthful, even if you're angry.

To maintain a relationship, keep these in mind:
1 Be gentle, not aggressive.
2 Ask questions, be actively interested in their opinions.
3 Actively validate the way they feel.
4 Have an easy manner. Watch your tone of voice & body language. It's not all about what you're saying.