THREAD: Women and "Unexplained" Diseases

It's interesting that even a condition as common as #Migraine is still not well understood.

Significant overlap with many other conditions mostly impacting women that are also "not well understood" is present.

https://t.co/EhrnxfItsm https://t.co/R7QUKrZvhR

2/ As a women’s health clinician & #COVID researcher I know ME/CFS, #LongCOVID & most autoimmune diseases disproportionately impact women after puberty. Female preponderance has likely contributed to the historical neglect of funding & subsequent lack of interest in studying them
3/ Paradoxically, the ongoing dismissal of many of women’s symptoms and abuse by the medical system is a direct result of our lack of understanding & ongoing LACK of funding.
cc: @jenbrea @ahandvanish @AthenaAkrami @Dr2NisreenAlwan @MBVanElzakker
https://t.co/ITrLBkc3uE
4/ This pattern of ignorance/lack of understanding and dismissal, further perpetuates the trauma women suffering from chronic illness must endure. @ahandvanish @AthenaAkrami @jenbrea @RanaAwdish @VirusesImmunity @angie_rasmussen

Example stats ME/CFS:
https://t.co/GKQqqtWTI7
5/ Or Functional Neurologic Disorder (FND) aka Conversion Disorder, Hysteria, or Psychogenic Non-Epileptic Seizures (PNES).

Majority of patients with PNES are women, outnumbering men by a ratio of 3:1. Female sex preponderance occurs after puberty & usually before the age of 55
6/ You don't have to look far. Patient's are SMART. Many patients are also clinicians and scientists.

Lack of data does not equal lack of EXISTENCE of a problem, it equals lack of UNDERSTANDING of the problem.

And this problem is immense.
https://t.co/TnF2j4dKs3
7/ The intersection of sex hormones and immunobiology has never been more important for us to understand.

My optimistic hope is that the enormous amounts of funding for #COVID19 open doors to understanding pathophysiology of previously neglected diseases particularly in women.
8/ Paternalism, sexism & racism are baked into medicine, medical training, and a broken healthcare system.

But our scientific ignorance should not be wielded to blame & further abuse patients.

Our lack of understanding is not their failure but ours.

https://t.co/LwN8qc0Q4a
9/ And while we're at it, could we just abandon certain medical terms like: "incompetent cervix" and "irritable uterus"...

There are more specific, more scientific, and less offensive terminology we can use for women's bodies.

@VirusesImmunity @angie_rasmussen @DocElovitz
10/ @threadreaderapp please unroll

To read more of my Threads, please check out: https://t.co/UMdZvE2tDj

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