..imagine a supersized energizer bunny. Because he's inarticulate, he uses alternative communication. However, it happens that he just runs out of what he could form out as words in his mouth or utilize a way to communicate his intent. He can grow frustrated at not being
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This is a long post. Triggered. Our son is 24 years old. He has autism (diagnosed at the age of 19 months, and NOT by Google). Among others, his ability to speak is limited. When he's happy, he jumps up & down & claps his hands, laughing out loudly & like a ball of energy..
..imagine a supersized energizer bunny. Because he's inarticulate, he uses alternative communication. However, it happens that he just runs out of what he could form out as words in his mouth or utilize a way to communicate his intent. He can grow frustrated at not being
able to get his meaning across. So, he yells and yells. At times, it isn't easy to stop it even though we have established key words that ought to help him simmer down. If not, I just let him blow that steam off until he cries. He cries like someone has died...howling even
He cries out of that frustration until he gets tired and stops. It is upsetting and breaks my heart each time.
I admit that when he was younger, we didn't bring him out as much because we didn't want him to make others uncomfortable. But now, I take the view that this is just wrong. This behavior does not define who he is. He is obedient (the most out of my three kids),
has a ready smile & smooch, considerate & hearty. I'll not deny my son his pursuit of happiness (he loves the mall & eating out). He's already limited, why would I set more boundaries? As his family, we do our best to protect him. We do this out of love, not because of pride
Please allow me to just debunk what has been said that "one word from a responsible parent is enough to make a child quiet down". This statement rolled off someone's tongue who either has no kids or likely was indifferent to his own.
Even a "normal" child, in certain situations, would be hard to quiet down. As for our son, since he was diagnosed, to the best of our abilities, we have not stopped in tapping resources to optimize his ability to communicate (both ways, to be on the giving and receiving end)
How could we not? Any parent would give anything to have lucid conversation with their child. But the reality is, there are cases in which this is not attainable in the conventional way. So we adjust, we accommodate.
Our society is governed by rules of convention, how this and that should be done. If one acts outside of these, knowing glances and snide comments abound. The result: intolerance, bias, discrimination, even hate. This happens in a non-inclusive environment, meaning,
there is no consideration, no empathy for those who may be differently abled or situated. I wonder, did even-handedness in applying policy mean exercising equality or equity? That difference is huge. This is what #PlantationBay does not get. Call a spade a spade.
#PlantationBay is NOT supportive of the community of parents with children who have special needs. But in the off chance they really want to be supportive, learn more about the differently abled. Huwag lang Gu-gelin. Katamaran yan and most insincere.
Sit down and consult with experts, with the families. See and appreciate our situation by trying to even stand in our own shoes. Then talk to us about equitable application of policies. That is real even-handedness.
Lastly, what happened here was not an isolated case at all. It happens everyday and everywhere. I am not glad at all that Fin and his mom got to experience this and what should have been a fun memorable time made forgettable.
More from Life
1/ Some initial thoughts on personal moats:
Like company moats, your personal moat should be a competitive advantage that is not only durable—it should also compound over time.
Characteristics of a personal moat below:
2/ Like a company moat, you want to build career capital while you sleep.
As Andrew Chen noted:
3/ You don’t want to build a competitive advantage that is fleeting or that will get commoditized
Things that might get commoditized over time (some longer than
4/ Before the arrival of recorded music, what used to be scarce was the actual music itself — required an in-person artist.
After recorded music, the music itself became abundant and what became scarce was curation, distribution, and self space.
5/ Similarly, in careers, what used to be (more) scarce were things like ideas, money, and exclusive relationships.
In the internet economy, what has become scarce are things like specific knowledge, rare & valuable skills, and great reputations.
Like company moats, your personal moat should be a competitive advantage that is not only durable—it should also compound over time.
Characteristics of a personal moat below:
I'm increasingly interested in the idea of "personal moats" in the context of careers.
— Erik Torenberg (@eriktorenberg) November 22, 2018
Moats should be:
- Hard to learn and hard to do (but perhaps easier for you)
- Skills that are rare and valuable
- Legible
- Compounding over time
- Unique to your own talents & interests https://t.co/bB3k1YcH5b
2/ Like a company moat, you want to build career capital while you sleep.
As Andrew Chen noted:
People talk about \u201cpassive income\u201d a lot but not about \u201cpassive social capital\u201d or \u201cpassive networking\u201d or \u201cpassive knowledge gaining\u201d but that\u2019s what you can architect if you have a thing and it grows over time without intensive constant effort to sustain it
— Andrew Chen (@andrewchen) November 22, 2018
3/ You don’t want to build a competitive advantage that is fleeting or that will get commoditized
Things that might get commoditized over time (some longer than
Things that look like moats but likely aren\u2019t or may fade:
— Erik Torenberg (@eriktorenberg) November 22, 2018
- Proprietary networks
- Being something other than one of the best at any tournament style-game
- Many "awards"
- Twitter followers or general reach without "respect"
- Anything that depends on information asymmetry https://t.co/abjxesVIh9
4/ Before the arrival of recorded music, what used to be scarce was the actual music itself — required an in-person artist.
After recorded music, the music itself became abundant and what became scarce was curation, distribution, and self space.
5/ Similarly, in careers, what used to be (more) scarce were things like ideas, money, and exclusive relationships.
In the internet economy, what has become scarce are things like specific knowledge, rare & valuable skills, and great reputations.
