It was December of 1992 and I was six, and "Aladdin" was in theaters. My sister and I weren't seeing it. My mother couldn't afford the tickets. I remember this because the three of us were sitting in the car and she cried + apologized for not being able to take us. (thread)

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Thread of decodes for the day. Make sure you check out the [SUB] threads too!

After the 9/11 attacks, airlines and public buildings adopted a flurry of "security" measures, like taking away pen-knives from fliers or requiring visitors to office buildings to be photographed or present a driver's license.

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Bruce Schneier's seminal 2003 "Beyond Fear" called these measures: #securitytheater.

Schneier pointed out that these measures would be easy to circumvent, and were thus providing only the comforting appearance of security - not security

Security theater is worse than nothing. Security theater gives people the false impression that their risks have been mitigated, when actually things are just as dangerous.

After al, if you know that danger exists, you can take some steps to mitigate or avoid it.

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But if you have the false impression that you've been made safer, you might unwittingly engage in risky behavior.

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Like, if you know your car's brakes are flaky, you might nurse the car along to the mechanic at low speed on side-streets.

But if you don't know about the brakes, you're apt to discover their flaws at 75mph on the freeway.

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I am done giving this doctor or team grace. I started with "We are tremendously grateful for all you are doing." He seemed irritated to speak to us. Literally I asked, "What is the likelihood our mom will die on current support, in the next 24 hours, so we can plan travel?"

He hammered us with how severe this was and that was. Yes, that is why I am asking the question. "We are asking you to be a thought partner so we can make responsible decisions as the family." I had had pre-conversations with doctor friends to understand the numbers and prognosis

He said "It would be illegal for me to tell you that she won't die, then she dies." Yes, that is why I said LIKELIHOOD - critical care docs deal in likelihoods. It so frustrating to be on this side and not get a fraction of the standard that I have been held to and hold myself to

Then I made the error of saying, "I'm a pediatrician, I literally do this work on family-centered, compassionate care." to which the charge nurse answered, "It is not the work we do. We keep people alive." End of life care IS your job. Planning IS your job. It's not just numbers

Compassion is not only a pediatric thing while critical care/end of life can proudly lack it. I've had more end of life conversations than I want to remember. My mom is not numbers. She is a human being. I am modulating my voice, complimenting you, leveraging my network.