She was asked about “Post Exertional Malaise”... 2/n
I held back from commenting overnight to chew it over, but I am still saddened by comments during a presentation I attended yesterday by Prof @trishgreenhalgh & @CIHR_IMHA.
The topic was “LongCovid, Myalgic Encephalomyelitis & More”.
I quote from memory.
1/n
#MECFS #LongCovid
Have you registered for IMHA's next webinar on Long-COVID? Guest speaker Professor Trisha Greenhalgh.
— CIHR-IMHA Community (@CIHR_IMHA) January 12, 2021
When? Tomorrow: *Jan 13th.* 12pm ET
A few spots are left, but going fast!
Registration required: https://t.co/T4PbWNA35Y@KarimKhan_IMHA @CIHR_IRSC @trishgreenhalgh pic.twitter.com/xlWKi4QKF1
She was asked about “Post Exertional Malaise”... 2/n
@Trishgreenhalgh acknowledged the new @NiceComms advice for LongCovid was planned to complement... 3/n
Then it all went wrong.
@TrishGreenhalgh noted the changes to the @NiceComms guidance for ME/CFS, removing support for Graded Exercise Therapy / Cognitive Behavioural Therapy. She noted there is a big debate about this. 4/n
https://t.co/0enH8TFPoe
However Prof Greenhalgh then went off-piste.
5/n
6/n
Aside from ethical issues of naming patients, this is an n=1 case.
7/n
Furthermore, @TrishGreenhalgh failed to mention Prof Jonathan Edwards’ (not on twitter) Expert Testimony.
8/n
His testimony can be found here:
https://t.co/qLhsBJ4Bcu
9/n
I find this ill-befitting of an academic of her standing.
10/n
It puts her view in the field of politics not medicine.
That opens her to political-style criticism, which would be a shame.
11/n
We must play the ball, not the player.
12/n
Perhaps that is why, between 2015-2016 only £5m / year was spent on researching the condition.
Or aproximatly £0.35p per person, per year. Ouch.
https://t.co/TUPEiSCLZq
13/n
It really hurts.
And how ‘aggressive’ were these patients? Is this tweet aggressive? Will I be blocked and blamed?
14/n
I have a fatiguing gut condition and was mis-diagnosed with ME/CFS 4 years ago. I walked 6Km / day.
A specialist ‘undiagnosed’ me as I did not have PEM.
But in 2005, could I have been eligible for a GET study, and might have felt better after exercise.
15/n
She likes to go for walks, and exercises when she can. Had she taken up the offer to participate in a trial, she may have improved too.
16/n
I also experienced gas-lighting from the 20+ docs who told me it was all in my head. Thankfully I now have much better medical support, but many struggle.
17/n
The condition needs research, and that starts with belief, and develops with high-quality, objective science.
END/
I am actually a big supporter of Prof Greenhalgh’s work. Masks are good. So is good patient care.
I have no malicious intent, but it is right to challenge bad pronouncements on this issue.
If you think I have got it wrong, please let me know.
Please challenge misinformation about on ME/CFS, but accept that even great people make mistakes. Forgive.
More from Education
Last month I presented seven sentences in seven different languages, all written in a form of the Chinese-character script. The challenge was to identify the languages and, if possible, provide a
Here again are those seven sentences:
1) 他的剑从船上掉到河里去
2) 於世𡗉番𧡊哭唭𢆥尼歲㐌外四𨑮
3) 入良沙寢矣見昆腳烏伊四是良羅
4) 佢而家喺邊喥呀
5) 夜久毛多都伊豆毛夜幣賀岐都麻碁微爾夜幣賀岐都久流曾能夜幣賀岐袁
6) 其劍自舟中墜於水
7) 今天愛晚特語兔吃二魚佛午飯
Six of those seven sentences are historically attested. One is not: I invented #7. I’m going to dive into an exploration of that seventh sentence in today’s thread.
Sentence #7 is an English-language sentence written sinographically — that is, using graphs that originate in the Chinese script. I didn’t do this for fun (even though it is fun), or as a proposal for a new way to write
I did it as a thought experiment. Why? Because thinking about how the modern Chinese script might be adapted to write modern English can give us valuable insights into historical instances of script borrowing, like those that took place centuries ago in Japan, Korea, and Vietnam.
\U0001f17b\U0001f130\U0001f17d\U0001f176\U0001f184\U0001f130\U0001f176\U0001f174 \U0001f180\U0001f184\U0001f178\U0001f189
— zev handel (@ZevHandel) December 17, 2020
The following sentences are in seven different languages, all written in Chinese-character script (or a modification of it). Can you identify the languages?
Sentences are in thread.
(1/3)
Here again are those seven sentences:
1) 他的剑从船上掉到河里去
2) 於世𡗉番𧡊哭唭𢆥尼歲㐌外四𨑮
3) 入良沙寢矣見昆腳烏伊四是良羅
4) 佢而家喺邊喥呀
5) 夜久毛多都伊豆毛夜幣賀岐都麻碁微爾夜幣賀岐都久流曾能夜幣賀岐袁
6) 其劍自舟中墜於水
7) 今天愛晚特語兔吃二魚佛午飯
Six of those seven sentences are historically attested. One is not: I invented #7. I’m going to dive into an exploration of that seventh sentence in today’s thread.
Sentence #7 is an English-language sentence written sinographically — that is, using graphs that originate in the Chinese script. I didn’t do this for fun (even though it is fun), or as a proposal for a new way to write
7) \u4eca\u5929\u611b\u665a\u7279\u8a9e\u5154\u5403\u4e8c\u9b5a\u4f5b\u5348\u98ef \u2013 Modern English
— zev handel (@ZevHandel) December 21, 2020
Today I want you to each two fish for lunch.
That this sentence is a written form of English is undeniable, as the sentence is made up entirely of English words following the rules of English grammar. 23/
I did it as a thought experiment. Why? Because thinking about how the modern Chinese script might be adapted to write modern English can give us valuable insights into historical instances of script borrowing, like those that took place centuries ago in Japan, Korea, and Vietnam.
** Schools have been getting ready for this: a thread **
In many ways, I don't blame folks who tweet things like this. The media coverage of the schools situation in Covid-19 rarely talks about the quiet, day-in-day-out work that schools have been doing these past 9 months. 1/
Instead, the coverage focused on the dramatic, last minute policy announcements by the government, or of dramatic stories of school closures, often accompanied by photos of socially distanced classrooms that those of us in schools this past term know are from a fantasy land. 2/
If that's all you see & hear, it's no wonder that you may not know what has actually been happening in schools to meet the challenges. So, if you'd like a glimpse behind the curtain, then read on. For this is something of what teachers & schools leaders have been up to. 3/
It started last March with trying to meet the challenges of lockdown, being thrown into the deep end, with only a few days' notice, to try to learn to teach remotely during the first lockdown. 4/
https://t.co/S39EWuap3b
I wrote a policy document for our staff the weekend before our training as we anticipated what was to come, a document I shared freely & widely as the education community across the land started to reach out to one another for ideas and support. 5/
https://t.co/m1QsxlPaV4
In many ways, I don't blame folks who tweet things like this. The media coverage of the schools situation in Covid-19 rarely talks about the quiet, day-in-day-out work that schools have been doing these past 9 months. 1/
Instead, the coverage focused on the dramatic, last minute policy announcements by the government, or of dramatic stories of school closures, often accompanied by photos of socially distanced classrooms that those of us in schools this past term know are from a fantasy land. 2/
If that's all you see & hear, it's no wonder that you may not know what has actually been happening in schools to meet the challenges. So, if you'd like a glimpse behind the curtain, then read on. For this is something of what teachers & schools leaders have been up to. 3/
It started last March with trying to meet the challenges of lockdown, being thrown into the deep end, with only a few days' notice, to try to learn to teach remotely during the first lockdown. 4/
https://t.co/S39EWuap3b
In Lurgan College today we are using our timely staff training day to hone our skills in the use of Google Classroom as we prepare to educate our pupils at home in the event of school closure in the future. #beprepared pic.twitter.com/E0LQkYqvBD
— Lurgan College (@LurganCollege) March 16, 2020
I wrote a policy document for our staff the weekend before our training as we anticipated what was to come, a document I shared freely & widely as the education community across the land started to reach out to one another for ideas and support. 5/
https://t.co/m1QsxlPaV4
