BC EDUCATION
Saved by @SteveeRogerr

I held back from commenting overnight to chew it over, but I am still saddened by comments during a presentation I attended yesterday by Prof @trishgreenhalgh & @CIHR_IMHA.

The topic was “LongCovid, Myalgic Encephalomyelitis & More”.
I quote from memory.
1/n
#MECFS #LongCovid

 The bulk of Prof @Trishgreenhalgh’s presentation was on the importance of recognising LongCovid patient’s symptoms, and pathways for patients which recognised their condition as real. So far so good.

She was asked about “Post Exertional Malaise”... 2/n
PEM has been reported by many patients, and is the hallmark symptom of ME/CFS, leading many to query whether LongCovid and ME/CFS are similar or have overlapping mechanisms.

@Trishgreenhalgh acknowledged the new @NiceComms advice for LongCovid was planned to complement... 3/n
the ME/CFS guidelines, acknowledging some similarities.

Then it all went wrong.
@TrishGreenhalgh noted the changes to the @NiceComms guidance for ME/CFS, removing support for Graded Exercise Therapy / Cognitive Behavioural Therapy. She noted there is a big debate about this. 4/n
That is correct: The BMJ published Prof Lynne Turner Stokes’ column criticising the change (Prof Turner-Stokes is a key proponent of GET/CBT, and I suspect is known to Prof @TrishGreenhalgh).

https://t.co/0enH8TFPoe

However Prof Greenhalgh then went off-piste.

5/n
Prof Greenhalgh avoided acknowledging significant objective issues with the science underpinning GET/CBT: unblinded trials, subjective outcomes, and candidates not meeting current ME/CFS criteria (few/any trials required Post Exertional Malaise (PEM) to include in the trial).
6/n
Instead, @TrishGreenhalgh blamed the change in @Nicecomms guidelines on “aggressive” (I quote from memory) patient groups. She then identified a well-known friend of hers who did GET, and found it helpful.

Aside from ethical issues of naming patients, this is an n=1 case.

7/n
If I told my GP “my mate got better by doing X” I would be laughed out of the surgery. Why is that being presented as “evidence” to a @CIHR_IMHA audience?

Furthermore, @TrishGreenhalgh failed to mention Prof Jonathan Edwards’ (not on twitter) Expert Testimony.

8/n
Prof Edwards went in to detail on the issues with the GET/CBT trials as part of @NiceComms’ review.

His testimony can be found here:
https://t.co/qLhsBJ4Bcu

9/n
In blaming “aggressive patients” for the change, Prof Greenhalgh took fire not on the science, nor an academic equal, but on patients who, like LongCovid sufferers, probably just want to be acknowledged and recover.

I find this ill-befitting of an academic of her standing.
10/n
She is respected. She has a big platform, to use it to support non-science (n=1 cases) and blame patients is awful, and deserves criticism.

It puts her view in the field of politics not medicine.

That opens her to political-style criticism, which would be a shame.
11/n
There are other medics who have done that, and have become infamous for their poor pronouncements. I hope that @TrishGreenHalgh will not go the same way.

We must play the ball, not the player.

12/n
As for ME/CFS patients? Well, who needs research when they get better with graded exercise, right?

Perhaps that is why, between 2015-2016 only £5m / year was spent on researching the condition.

Or aproximatly £0.35p per person, per year. Ouch.

https://t.co/TUPEiSCLZq

13/n
As to “aggressive patients”, I do not know their story, but perhaps LongCovid and Endometriosis sufferers will sympathise with the pain of being dismissed?
It really hurts.

And how ‘aggressive’ were these patients? Is this tweet aggressive? Will I be blocked and blamed?

14/n
Why do I care?
I have a fatiguing gut condition and was mis-diagnosed with ME/CFS 4 years ago. I walked 6Km / day.

A specialist ‘undiagnosed’ me as I did not have PEM.

But in 2005, could I have been eligible for a GET study, and might have felt better after exercise.

15/n
I am not alone. A friend was diagnosed with #MECFS for a decade. It turned out she had Cushings.

She likes to go for walks, and exercises when she can. Had she taken up the offer to participate in a trial, she may have improved too.

16/n
Both would have erroneously supported GET & CBT, in spite of not having PEM or ME/CFS.

I also experienced gas-lighting from the 20+ docs who told me it was all in my head. Thankfully I now have much better medical support, but many struggle.

17/n
As fellow humans, we should support the sick.

The condition needs research, and that starts with belief, and develops with high-quality, objective science.

END/
@bendymarsh, @benh_mecfs grateful for your thoughts.
Addendum: Well, I have been blocked, and comments have been made.

I am actually a big supporter of Prof Greenhalgh’s work. Masks are good. So is good patient care.

I have no malicious intent, but it is right to challenge bad pronouncements on this issue.
In my comment I have tried hard to avoid Ad Hominem or malice. Challenge is not malice.

If you think I have got it wrong, please let me know.

Please challenge misinformation about on ME/CFS, but accept that even great people make mistakes. Forgive.
People have a right to reply. She didn't reply to me, but this is her recollection of the discussion. I hope including it makes this thread more balanced.

More from Education

Andrew Lee
Andrew Lee
@andrewleedr
Normally I enjoy the high standards of journalism in @guardian . Not today as disappointed with misleading headline that suggest infections are spreading fastest in children. It'll worry parents/teachers & I doubt most readers will unpick the

The latest REACT1 report shows prevalence of infection in ALL age groups has fallen, including children aged 5-12 from 1.59% in Round 8 to 0.86% in Round 9a. The authors of REACT1 report also (wisely) didn't try to interpret the prevalence figures.

If this were a research trial you wouldn't place much weight on the age differences in % prevalence because of the wide confidence intervals, i.e. differences weren't statistically significant.
3/

I've previously tweeted on the challenges (& dangers) of interpreting surveillance data. One would need lots more contextual info to make sense of it & arrive at sound


Undoubtedly some will extrapolate from the prevalence of infection figures in children to other settings i.e. schools based on the headline. I'd advise caution as there is a real risk of over-interpretation through extrapolation of limited data. Association is not causation.
5/
EDUCATION
Anthony Lee Zhang
Anthony Lee Zhang
@AnthonyLeeZhang
I often say to grad students: a reasonable thing to aim for in grad school is ~2-3 essentially complete and posted papers, alongside your JMP. This often looks like your JMP, plus your 2nd-yr paper, a paper from RA'ing for a faculty, or from working with classmates

Of course, some people get top jobs with only one very, very good paper. This is very risky though - you don't know ex-ante whether your paper will be very good! Most schools care about productivity, so having a couple of completed papers helps

Even if the papers are not change-the-world papers. Also, it exercises your paper-writing muscle. Not everyone comes into grad school ready to write ECMA's!

One "mistake" I sometimes see is some students don't take the 2nd year paper seriously enough. That's basically your only big milestone other than your JMP, so if all the time you put into the 2nd year paper doesn't produce a draft, that's a pretty big time sink

Another mistake, ironically, is taking field class paper requirements too seriously. If you take 3 field classes a quarter, 3 quarters, that's 12 papers! There's no way you can write a different one for each class
EDUCATION
Advertisement
Sarah Allen
Sarah Allen
@Mssarahmssarah
For months, but especially after the new CDC school recs came out, supporters of reopening all schools now have been peddling the idea that schools across the country have been open all year successfully. This argument is used to push for ALL schools to be opened now.

A long 🧵

Though some schools in the U.S. are open & doing well with safety protocols, many places used as examples of opening success have profoundly unsafe schools & are neglecting covid safety. Some have been lucky not to have outbreaks and other issues--it's not that they're safe.

In the last few weeks, I've been in touch with teachers in Ohio, Florida, Texas, Wisconsin, New Jersey, Utah, and Pennsylvania.

(Thanks to @eduwonkette_jen @GeoRebekah and @saribethrose for the threads and forums that have helped me meet SO MANY teachers this year).

I collected the accounts of dozens of teachers. Obviously, this isn't an exhaustive list and it isn't a study! It's what teachers on the ground in some states are experiencing. And it's easy to see why so many in our profession are so frightened this year.

Here's the list:

There are currently open schools in the US that are being hailed as "successful" that have:

▪️no safety protocols at all besides contact cleaning, in some districts
▪️some districts with no mask mandate
▪️classes in windowless rooms, some with full classes of 20-30
EDUCATION
Fadel Adib
Fadel Adib
@fadeladib
I've been serving on grad admissions committees at MIT for 5 years - in EECS and Media Lab

If you want to get into a PhD at a place like MIT, here's a thread with some advice based on my observations

1/13

1. Grades do matter, especially in courses that are important for your chosen field

2. Research matters, even more than grades

3. Publications matter, but letters of recommendation matter even more

4. Your statement of purpose should be the cherry on top of the cake

2/13

When I say grades matter, it doesn't mean that you need 100/100 or A+ in every course. It does mean that you are expected to have strong competence (close to straight A/A+/A-) in technical courses relevant to your field of interest

3/13

While grades show competence, a PhD is about research. So, the more your application demonstrates research potential, the higher your chances for acceptance. It's not about the number of papers (if any), but about the quality of research you pursue

4/13

This is why the best evaluation of research potential often comes from letters of recommendation (LoRs)

Letters shed light on technical competence, creativity, work ethic, & personal interaction. All of which are important for a successful PhD

5/13
EDUCATION
Momentswithbren Consulting
Momentswithbren Consul...
@MomentsWB
Below is a list of awesome courses that dive into all different aspects of visual communication and storytelling.

Visual storytelling is a way for people to communicate their story using visuals and digital media such as video, graphics, and photography.

Visual Storytelling appeals to the emotions of the intended audience and it can humanize the business, giving the target market a way to relate to the business and their story.

1. The Art of Storytelling

2. Visual Thinking: Drawing Data to Communicate Ideas
https://t.co/YPiexr9RYJ

3. Find what fascinates you as you explore these visual storytelling

4.  Awesome and affordable online art classes for artists of all skill levels! Take your art to the next level no matter where you are. https://t.co/k7xpp4sR4r

5. Digital Storytelling

6. Visual Storytelling | For Screenwriters & Novelists

https://t.co/FsZ7EFFVzo

7. Learn about storytelling with online courses and
EDUCATION

You May Also Like

Jaya_Upadhyaya
Jaya_Upadhyaya
@Jayalko1
NARHARI AND BHAGWAN PANDURANG/VITTHAL

Once a goldsmith by the name of Narhari lived in Pandharpur. He excelled in his craft. He had vowed not to look at Pandurang or visit his mandir ever, as he was a Shiva Bhakt.
One day, a wealthy merchant visited him.


He wanted a gold girdle studded with precious gems, to be made for Prabhu Vitthal. Narhari refused to make it as it was for Vitthal.
After many requests, he agreed to make the girdle but asked the merchant to bring the measurement from the mandir as he himself would not go there


The measurement was given n he made the girdle. When the girdle was put on Vitthal, it was loose. Narhari had to shorten it. Now the girdle became tight. So Narhari was forced to take measurement on his own. He had to go to the mandir but went blindfolded to avoid seeing Vitthal


In the Mandir, when blindfolded Narhari touched Vitthal, he felt as if he was touching Shiva with matted hair, the moon, snake in His neck and Trishul in His hand. Ecstatic with joy, he removed the blindfold to see Shiva but he found the murti of Vitthal with Rukmini there.


He realised the truth that there was no difference between Vitthal and Shiva. Narhari at once fell at the feet of Panduranga. He then took the measurement of the waist of Vitthal and this time the ornament fit the Murti perfectly.

Narayan Hari🙏🏻
ALL
Chris Herd
Chris Herd
@chris_herd
I've spoken to 1,500+ people about remote work in the last 9 months

A few predictions of what is likely to emerge before 2030

[ a thread ] 💻🏠🌍

🚜 Rural Living: World-class people will move to smaller cities, have a lower cost of living & higher quality of life

These regions must innovate quickly to attract that wealth. Better schools, faster internet connections are a must

⏰Asynchronous Work: Offices are instantaneous gratification distraction factories where synchronous work makes it impossible to get stuff done

Tools that enable asynchronous work are the most important thing globally remote teams need. A lot of startups will try to tackle this

⚽️Hobbie Renaissance: Remote working will lead to a rise in people participating in hobbies and activities which link them to people in their local community

This will lead to deeper, more meaningful relationships which overcome societal issues of loneliness and issolation

🌍Diversity & Inclusion: The most diverse and inclusive teams in history will emerge rapidly

Companies who embrace it have a first-mover advantage to attract great talent globally. Companies who don't will lose their best people to their biggest competitors
REMOTE WORK
Advertisement
Murray \U0001f1fa\U0001f1f8
Murray 🇺🇸...
@Rothbard1776
NEW: @SidneyPowell1 radio interview w/ @toddeherman "The new report has a truckload of evidence of foreign interference in the election in it. That's what people seem to want to deny, even though the FBI & CISA ... issued an advisory and alert back on Oct. 30th & updated on

2/ Nov. 3rd, so for them to deny that now is absolutely absurd. Plus, we have an affidavit from an expert cyber-warfare [individual] who even shows the diagram of all the attacks coming in. We know that the VPN ... the Dominion people left those open and unencrypted on the night

3/ of the election, so that anybody could get in. We know that the packets of information went to Serbia [note: over 100 Dominion employees scrubbed there LinkedIn profiles of any affiliation with the company after the election, many of whom were in Serbia], Liechtenstein,

4/ Spain, Venezuela, Hunan, China & Hong Kong. There was traffic all over into our election system that is supposed to be self-contained, not accessible by the internet at all. We have witnesses who document that it was connected to the internet. We have a study out of

5/ [the Dominion voting system in Antrim] MI, they know that it was connected to the internet. They erased their audit files & their adjudication files, where they dumped over 68% of their ballots into a bin that they call "adjudication" [that would've been thousands + thousands
POLITICS , ELECTIONFRAUD
SK
SK
@sk_diary1
Margatha Natarajar murthi - Uthirakosamangai temple near Ramanathapuram,TN
#ArudraDarisanam
Unique Natarajar made of emerlad is abt 6 feet tall.
It is always covered with sandal paste.Only on Thriuvadhirai Star in month Margazhi-Nataraja can be worshipped without sandal paste.


After removing the sandal paste,day long rituals & various abhishekam will be https://t.co/e1Ye8DrNWb day Maragatha Nataraja sannandhi will be closed after anointing the murthi with fresh sandal paste.Maragatha Natarajar is covered with sandal paste throughout the year


as Emerald has scientific property of its molecules getting disturbed when exposed to light/water/sound.This is an ancient Shiva temple considered to be 3000 years old -believed to be where Bhagwan Shiva gave Veda gyaana to Parvati Devi.This temple has some stunning sculptures.
ALL
Carol Forden
Carol Forden
@CarolForden
1. The major problem most startups face is marketing and the ability to carve out a niche, find and retain paying customers.

Even with a stellar developer team and a stellar product, your startup may not grow or survive without a great marketing and sales teams.

2. Start growing your audience before you’ve a product or an idea.

You should start promoting yourself and building your audience before you have a finished product or even before you have a great idea that you want to build.

3. Don’t wait to start building your audience after you’ve launched a product.

Most first-time developers actually ignore marketing.

They’re oblivious to the challenge of attracting people to take a look at something they’ve created.

4. At least until they see their first project crash and burn within hours of the launch.

There are so many times that I have seen developers spend countless hours building something, releasing it with no fanfare...

5. and only then trying to figure out how to promote it by asking marketing questions on Indie Hackers, Quora or Hacker News. Don’t make that mistake.
STARTUPS