A request for comment from people living with life-limiting diagnoses:
I am developing a workshop for the general population on creating a healthier relationship to mortality- and I want to amplify the voices of those engaged in the confrontation.
If there is something that you feel you want the wider culture to understand about living with life limiting illness, but is hard to get others to hear or withstand,
and you want me to share it in workshop- please contact me here or through my
What do you feel the culture does not understand about the labors of confronting mortality? What do you have to protect others from about your experience? What do you have to edit away from people who think this will never happen to them?
So much of what is talked about in these space, is offered by people who are vicariously impacted, or who are trying to stay near
What would you want your wider community to integrate and understand about your experience that they turn away from?
I will attribute your comments to you in the workshop, or I can keep them anonymous if you prefer.