A little thread about language and #HumanRights...

Recently I shared an NHS letter (not mine) that started with the line 'The vast majority of babies are normal.' It meant 'normal' as opposed to babies born with particular conditions, including #DownsSyndrome

Regularly hearing negative language about your child is emotionally wearing. And surprisingly hard to challenge in the moment (for me anyway... which is possibly why I choose to try and challenge it by writing about it).
A fortnight before Rosa was born, a consultant explained the problem they'd spotted with her digestive system, and then went on to say "...and now I have to say something to you that's not very nice... this condition is often associated with Down's syndrome."
In hospital, nearly three weeks after Rosa was born a nurse repeatedly told me what my baby wouldn't do compared to a "normal baby".
In my first conversation with the Health Visitor her opening question was "Did you know she was going to be Downs?"
After Rosa's first multi-disciplinary review we got a letter that started with the heading 'Problems' in bold text.
... and so it goes on.

But it's not just difficult because someone is speaking about your child using language loaded with negative assumptions. It's difficult because you know it's a reflection of how people with learning disabilities are widely viewed and treated.
It's also hard to read stories about people with learning disabilities dying several decades early (https://t.co/11zZxITagN), or being more than three times more likely to die of COVID (https://t.co/EsJ55Ffl3H), or very often experiencing hate crime as part of daily life.
All of these things are further impacted by additional factors like poverty, race etc...
The depressing headlines are the result of discrimination that's built into how we choose to organise society. Words that cast people as 'other' and reinforce an idea that their lives are less valuable help create the conditions in which that's allowed to happen.
Of course, the other part of this story is that language evolves and society progresses. There are words relating to Down's syndrome that I was familiar with as a child, that Rosa might well never hear.
The experience of having a baby with Down's syndrome now is very different to what it was a few short decades ago. And in my experience of navigating life and services with Rosa the negative words are undoubtedly outweighed by the positive ones.
I hope people keep growing more thoughtful about the words they use (often hurtful language isn't meant that way)...and I hope all the warm words about a more equal society post-pandemic really do result in different choices - ones that lead to the realisation of #HumanRights
And I hope that, even once my girl doesn't have her extreme cuteness to fall back on, she'll be just fine ❤️

More from Society

Imagine if Christians actually had to live according to their Bibles.


Imagine if Christians actually sacrificed themselves for the good of those they considered their enemies, with no thought of any recompense or reward, but only to honor the essential humanity of all people.

Imagine if Christians sold all their possessions and gave it to the poor.

Imagine if they relentlessly stood up for the widow, the orphan, and the foreigner.

Imagine if they worshipped a God whose response to political power was to reject it.

Or cancelled all debt owed them?

Imagine if the primary orientation of Christians was what others needed, not what they deserved.

Imagine Christians with no interest in protecting what they had.

Imagine Christians who made room for other beliefs, and honored the truths they found there.

Imagine Christians who saved their forgiveness and mercy for others, rather than saving it for themselves.

Whose empathy went first to the abused, not the abuser.

Who didn't see tax as theft; who didn't need to control distribution of public good to the deserving.
@Suman68082748 @thetwinkwolff @x_karran_x @Sunil9130 Lets stop the criticism guys. The lad is good. Losses happen. Losses to unranked players happen too. As do wins vs top 10ers. Let's accept both. Remember Sumit and the likes of him are the best we have. See the bigger picture please.

@thetwinkwolff @x_karran_x @Sunil9130 When the Europeans or South Americans were getting quality practice and tourneys week in week out at reasonable costs, our kids were playing on dung courts or learning outdated serve and volley on grass. Appreciate the fact that the last 10 years have been a hell lot better than

@thetwinkwolff @x_karran_x @Sunil9130 the 10 before that. Real change can't come in a day or even in 10 years. So let's grit our teeth and bide our time till we have an organic self sustaining system in place.

@siyer30 @SportaSmile @Cric_Writer @RomilShukla @amanthejourno

@thetwinkwolff @x_karran_x @Sunil9130 @siyer30 @SportaSmile @Cric_Writer @RomilShukla @amanthejourno Tennis is my favourite sport in the universe. Has always been. Will always be. I was in love with Steffi and Pete a lot before I fell for Sachin. And while I would love every toddler in my family to play sports professionally, I won't encourage them to pursue my favourite sport.

@thetwinkwolff @x_karran_x @Sunil9130 @siyer30 @SportaSmile @Cric_Writer @RomilShukla @amanthejourno It will be career suicide. In other sports, I can actually plan for my ward to be the next Lin Dan or the next Tiger Woods or the next Schumacher even from a base in India. With tennis, in 2020 I can't do that realistically. Just doesn't adds up. Even for total freaks of nature.

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Great article from @AsheSchow. I lived thru the 'Satanic Panic' of the 1980's/early 1990's asking myself "Has eveyrbody lost their GODDAMN MINDS?!"


The 3 big things that made the 1980's/early 1990's surreal for me.

1) Satanic Panic - satanism in the day cares ahhhh!

2) "Repressed memory" syndrome

3) Facilitated Communication [FC]

All 3 led to massive abuse.

"Therapists" -and I use the term to describe these quacks loosely - would hypnotize people & convince they they were 'reliving' past memories of Mom & Dad killing babies in Satanic rituals in the basement while they were growing up.

Other 'therapists' would badger kids until they invented stories about watching alligators eat babies dropped into a lake from a hot air balloon. Kids would deny anything happened for hours until the therapist 'broke through' and 'found' the 'truth'.

FC was a movement that started with the claim severely handicapped individuals were able to 'type' legible sentences & communicate if a 'helper' guided their hands over a keyboard.